I really hate this. I hate that i have no control over this and no choice but to put her through all of this. I dont think i will ever accept that my daughter has a life threatening health problem,... i will always get angry, sad, and have so many unanswered questions..... and i hate that. I hate that i will always ask why? why her? why us?. It's hard to think or even talking about her having to go through all of this. She is so little and shouldn't have to. I know all i can do is try to learn how to cope and live with this journey my family was given. I also know that god is right there guiding Emery through this every step of the way.
so glad he is in are life!